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Hello Reader, Since it was first described by Dr. Hallopeau in 1887, Lichen Sclerosus has been considered a rare and mysterious disease. Fast forward to 2022 and we have new tools, tools that allow LS sufferers from around the world to connect, unite, and share their experiences. While the U.S. Department of Health describes LS as "estimated that between 1 in 300 to 1 in 10 00 people have lichen sclerosus" We know that it is much more prevalent than this and as such is sorely neglected by researchers leaving doctors with few tools to help their patients. So, we're taking matters into our own hands and seeking out specialists across a broad spectrum of specialties from functional medicine to conventional gynecology, pelvic floor therapy, and nutrition. The Lichen Sclerosus Support Network has gathered these specialists in one place to put on a free event to help as many LS patients as possible. Join us, this is gonna be epic!
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I'm an Oncology Nutrition Consultant and lived experience mentor providing education, data-driven nutritional recommendations, and trauma-informed strategic environmental and lifestyle design for those living with cancer, autoimmunity, and complex chronic illness.